This conference includes
all medical specialties that work with CDH patients including pediatric
surgeons, neonatologists, geneticists, dieticians, pediatricians,
pulmonologists and others as well as the patients and families affected
by CDH to come together to search for the cause, prevention and best
treatments of Congenital Diaphragmatic Hernia.
All medical
professionals are welcome to attend both the CDH Medical and CDH Family
Conferences. There is a $150 conference fee for medical professionals.
Tuesday, June 24th - Research Presentations*
• Poster Presentations & Display (submissions can be sent to research@cdhsupport.org)
• Vendors
Wednesday,June 25th - Round Tables / Panels
• Evening Pizza Party at Parent Conference
• Parade of Cherubs
• CDH Research on Capitol Hill
• Vendors
Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party
Friday, June 27th - Conclusion
• Medical Panel at Parent Conference
• Medical Conference Conclusion
• Vendors
Medical Professionals only allowed on Tuesday, June 24th
POSTER AND PAPER SUBMISSIONS
Abstracts and posters may be submitted to research@cdhsupport.org by June 15th for consideration.
They will be reviewed jointly by your conference hosts.
PAST PRESENTERS
The following have presented at CDH Family Conferences in past years:
• Jay Wilson, MD - Boston Children's Hospital, Harvard University
• Patricia Donahoe, Massachusetts General Hospital
• Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
• David Kays, MD - University of Florida at Gainesville / SHANDS
• Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
• Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
• Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
• Kevin Lally, MD - CDH Study Group
• Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
• Dr. Edmund Yang, St. Louis Fetal Care Institute
• Ruben Quintero, MD - Fetal Treatment Program
• Priscilla Chiu, MD - Sick Children's, Toronto, Canada
• Brenda Slavin, RN - Children's National Medical Center, Washington DC
CDH FAMILY CONFERENCE
Thursday, June 26th - Capitol Hill
• Capitol Hill Visits
• Parade of Cherubs
• Pizza Party
Friday, June 27th - Research Day
• Medical Speakers
• Medical Q&A Panel
• Free Genetic Testing
• CDH Lab & Clinic Tours
Saturday, June 28th - Awareness Day
• CDH Research Bill
• April 19th
• Volunteering
• Fundraisers
Friday, June 29th - Support Day
• Round Table Discussions
• Kids CDH Song Performance
• Family Conference Conclusion
Because
our conferences are confidential to maintain privacy and allow parents
to talk freely about their journeys with CDH, we only allow members of
CHERUBS to attend. This is also to keep our members safe and medical
information private. All CDH parents are invited to join CHERUBS for
free by registering at our site at http://www.cdhboards.org
• 3 half-days so you have time to see local attractions
• Pizza party and parade of cherubs
• World renown guest speakers
• Great round-table discussions for families of survivors and angels
• Participate in CDH Research
• Meet other CDH families
• Kids are always welcome!
• Special needs families often qualify for grants to attend (check with your social worker)
• Our conference makes a wonderful family vacation
About The CDH Family Conference:
• Expect to learn a lot about Congenital Diaphragmatic Hernia!
• Our guestspeakers are always the best in their fields, bringing us new information every year!
• ALL CDH families are welcome to attend! This includes families of survivors, grieving families and expectant families.
•
Our conferences include family introductions, round-table discussions,
research guest lectures, Q&A sessions and much more!
• Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH
Support Day.
• CHERUBS conferences are planned to be educational, supportive and affordable!
• Our conference hotels always offer rooms around $100 per night, breakfasts and parking.
• Meet new friends, see old friends and participate in research for various hospitals.
• Our conferences are always half days so that families can enjoy local tourist attractions.
• Children are welcome and babysitting services will be provided during conference hours.
• Our conferences are held near top rated hospitals for safety.
• We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
• Join in our new Parade of Cherubs at every conference!
• Join in our balloon releases at every conference!
• We have a pizza party on the first night of every conference.
• Kid's get a chance to learn the CDH kids song and perform on the last day of the conference.
• CHERUBS does not charge a conference fee.
• For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You
may register for free at http://www.cherubs-cdh.org/members
• Many families of survivors are eligible for grants to cover travel expenses to medical
conferences. Ask your child's social worker for more information.
Registration for CDH families is just $5.00 per person for the entirety of the conference and includes pizza party.
ACCOMODATIONS
Will be posted soon!
SPONSORSHIP & VENDOR OPPORTUNITIES
Breakfast Sponsorship on Tuesday, Wednesday, Friday, or Saturday: $1500 + Cost of
Food after May 30, $1200 + Cost of Food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website.
Breakfast Sponsorship Thursday- A special opportunity to reach medical professionals,
researchers, and parent participants during the only joint session of the conference! $2000 +
Cost of Food after May 30, $1500 + Cost of food if contract is signed and paid prior to May 30.
Sponsorship includes Logo displayed on Screen prior to and post talks, product distribution on
tables, acknowledgement in program and on conference website.
Pizza
Party- During this session the medical professionals, researchers, and
families will come together for food and fellowship. This is the night
prior to the beginning of the Family Conference, and families introduce
themselves and share their CDH stories.
3 $1000 sponsorships are available.
1 $2500 sponsorship non-competing sponsorship available (No competing companies will be allowed to sponsor)
Kids Entertainment room: Entertainment room with babysitters during parent conference only (Thursday-Saturday 8am-12pm). $2000.
Other Sponsorship Opportunities:
Conference Bags- $2000 Includes sponsor’s logo on one side of bag and CHERUBS logo on
other side of bag. CHERUBS to manage ordering and production of bag, at no additional cost to
sponsor.
Lanyard/ Badge Holder- $1500 Includes sponsor's logo and the CDH awareness
ribbon. CHERUBS to manage ordering and production of lanyard at no additional cost to
sponsor.
Information/Advertisements in bags- $250
Contact Ashley Barry at abarry@cherubs-cdh.org or 919-624-2883 for more information or
purchase sponsorship on-line at
http://www.cdhconference.org
CHERUBS MEDICAL ADVISORY BOARD
• Patricia Donahue, MD – Massachusetts General Hospital
• David Kays, MD – University of Florida at Gainesville
• Henry Rice, MD – Duke University Medical Center
• Edmund Yang, MD – Fetal Treatment Center of St. Louis
• N. Scott Adzick, MD – Children’s Hospital of Philadelphia
• Kevin Lally, MD, MS - University of Texas Medical School at Houston, CDH Study Group
• Wendy Chung, MD - Columbia Presbyterian, DHREAMS
• Doug Miniati, MD - University of California San Francisco
• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven, Belgium
• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK
• Steadman McPeters, NP - Pediatric Surgery Nurse Practioner, Huntsville
CDH Family Conference:
Because our conferences are confidential to maintain privacy and allow
parents to talk freely about their journeys with CDH, we only allow
members of CHERUBS to attend. This is also to keep our members safe and
medical information private. All CDH parents are invited to join
CHERUBS for free by registering at our site at http://www.cdhboards.org
* 3 half-days so you have time to see local attractions * Pizza party and parade of cherubs * World reknown guest speakers * Great round-table discussions for families of survivors and angels * Participate in CDH Research * Meet other CDH families * Hotel rooms are always affordable for the area * Kids are always welcome! * Special needs families often qualify for grants to attend (check with your social worker) * Our conference make a wonderful family vacation!!!!
50% of funds raised go to CHERUBS, 50% to CDH Research at hospitals (you pick a hospital by choosing a "Parade Team" on the link above).
Click on JOIN NOW to get started! Shirts are listed at the bottom.
Adult Shirts - $20.00 Child Shirst - $15.00
You can also sponsor a Parade have your company's name / logo or your
cherub's photo / name on shirt worn around the world! Check out the
Sponsorships available by clicking JOIN NOW.
You can also register for parades here and set up a page in honor/memory of your cherub!
Orders must be received by March 31st to receive by April 19th.
Companies and Families are invited to sponsor our 2013 Parades of Cherubs.
Blue
Sponsorship Tax-deductible sponsorship
includes your large size company logo or
child's photo on national event
literature and shirts
$5000.00
Pink
Sponsorship Tax-deductible sponsorship
includes your medium size company logo
or child's photo on national event
literature and shirts
$1000.00
Yellow
Sponsorship Tax-deductible sponsorship
includes your company name or child's
name on national event literature and shirts
$500.00
White
Sponsorship Tax-deductible sponsorship
includes your company name or child's
name on national event literature and
shirts in small text.
$100.00
Click on JOIN NOW to get started on a sponsorship. E-mail us at events@cdhsupport.org with any questions and with your logo.
Back of Shirt
Sponsor Logo / Photo Sizes
Front of Shirt
Shirt designs are subject to change before March 31
CHERUBS reserves the right to refuse inappropriate sponsorships if necessary.
Sessions to Address “Parade of Cherubs” in Washington to Raise Awareness for Congenital Diaphragmatic Hernia (CDH)
WAKE FOREST, NC (April 9, 2012) – On Thursday, April 19, U.S. Sen. Jeff Sessions (R-AL) will meet with over 250 people participating in a “Parade of Cherubs” in Washington, DC, to raise awareness of a birth defect called congenital diaphragmatic hernia (CDH). Sen. Sessions’ two-year old grandson, Jim Beau, is a CDH survivor. In Jim Beau’s honor, the Senator’s family will take part in the event, and Sen. Sessions is requesting a Congressional Bill for the benefit of Congenital Diaphragmatic Hernia Research.
CDH is a birth defect of the diaphragm. It occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity, inhibiting lung growth. CDH affects approximately one in every 2,500 babies, or about 1,600 babies in the United States each year. It is as common as cystic fibrosis and spina bifida. Roughly 50 percent of babies born with CDH do not survive. The cause is still unknown.
“CDH awareness and research is very important and especially to me because my grandson, Jim Beau, was born with CDH in 2009,” said Senator Sessions. “This is a life threatening birth defect that not many people have heard about. Only 50 percent of the babies survive and that number could and should be higher. Research and awareness are key and we are excited that CHERUBS chose to parade in DC this year.”
The parade has been organized through CHERUBS, a North-Carolina based grassroots nonprofit organization started by Dawn Williamson whose son, Shane, died in 1999 at the age of six from CDH complications. Children donned in wings will begin the three-mile walk at 10:00 a.m. at the Lincoln Memorial; they will travel past the Washington Monument and the White House, and conclude at the U.S. Capitol Building.
Massachusetts General's CDH Genetic Study Lab will have representatives walking in the parade. During their visit to Washington they will take blood samples from relatives of CDH victims for genetic research.
“We are thrilled to have so many survivors and families affected by CDH as well as the medical community come out to support the cause,” said Dawn Williamson, president and founder of CHERUBS. “Families from all corners of the country plan to participate in the parade, and we expect the number to grow as we get closer to the event.”
Several other cities across the U.S. are hosting a cherubs parade on the same day including, Chicago and Peoria, Ill.; Denver; Portland, Ore.; Seattle; and St. Louis. The St. Louis Fetal Treatment Institute, known for conducting in utero procedures on CDH babies, has been an integral part of organizing their local event. There will also be a national candle lighting in the U.K.
A virtual parade of Cherubs has been set up on Facebook and Twitter so people can show their support by uploading photos and videos from their smaller awareness/fundraiser events.
If you would like to help spread the word, or to learn more about CHERUBS and the upcoming parades, please visit www.cdhsupport.org.
###
Additional Events:
Washington DC Parade of CHERUBS takes place on April 19, 2012 starting at the Lincoln Memorial at 10:00. It is being led by Dawn Williamson, President of CHERUBS and mother to Shane, a non-survivor and Melissa Larrison, Virginia State Representative and mother to Hanna Larrison, also a non-survivor. http://cdhawareness.eventbrite.com
The Denver Parade of CHERUBS takes place on April 19, 2012, at Sand Creek Park starting at 3:30 pm. The event will start with the reading of the proclamation issued by Governor Hickenlooper and will follow with recognition of the health care professionals in Colorado who lend so much to the conduct and advancement of medical treatment for this congenital defect. A moment of silence will be observed in memory of those CHERUBS who have been lost to CDH. Finally, participants will take part in a three-stage balloon release in memory of our CHERUB Angels, in honor of our CHERUB Warriors, and in anticipation of those CHERUBS who will arrive soon. The event was organized by Nicolle Colvin the Colorado State Representative for CHERUBS, Victoria Grover, and Jennifer Rodi. http://denverparadeofcherubs.eventbrite.com/
The Peoria Parade of Cherubs takes place on April 22, 2012 in Glen Oak Park beginning at 2:00 pm. The event was organized by Kristin Aigner and Sarah Polich. Kristin is an RN in the NICU and coordinates CDH Follow up Clinic at OSF St Francis Medical Center and is the sister of Christopher, who was born with CDH in 1973. Christopher grew his wings and flew to Heaven two months after he was born. Sarah 's daughter, Kalianna, was born with CDH and is now a happy, thriving 8 month old. The Parade route is around Glen Oak park, followed by a ceremony to honor Cherubs in Heaven, ending with the joy of being together, refreshments and kids playing in the park. http://peoria2012paradeofcherubs.eventbrite.com/
The Seattle Parade of CHERUBS takes place on April 19, 2012 and is being organized by CHERUBS Washington State Representative, Christina Stembler, whose Son, Hunter Stembler, was born with CDH. Christina invites Everyone that has been affected in any way by CDH, to take part in the parade. Meet on Pier 62/63 next to the Seattle Aquarium at 11:00 A.M. We will be walking to Waterfront Park and Releasing Balloons in Loving Memory of all CHERUBS lost and in celebration of CDH Warriors and the awareness that they share on a Daily basis. http://seattleparadeofcherubs.eventbrite.com/
CHERUBS is working with Children's Memorial Hospital to put on the Chicago Parade of Cherubs. The Illinois Representative for CHERUBS, Neil Rubenstein, is organizinng the Chicago Parade. Starting at 11:00 a.m., participants will take part in a balloon launch at Oz Park to pay respect to all those Cherubs lost. Then they will be walk 1.2 miles by the hospital and the Ronald McDonald House (which so many CDH families frequent during their child's often long stay at the hospital). Close to 70 people (from three states) are expected to participate in this awareness event. http://chicagoparadeofcherubs.eventbrite.com/
The St Louis Parade of CHERUBS takes place on April 19, 2012 and is a joint project of CHERUBS and the St. Louis Fetal Care Institute. It will include a walk around the hospital grounds, a presentation, candle lighting and lighted balloon release. http://stlouis2012paradeofcherubs.eventbrite.com/
Oregon & SW Washington members of CHERUBS will be holding Portland's "Parade of Cherubs" for the International CDH Awareness Daily Celebration in conjunction with several other cities in the USA & UK on Thursday, April 19th from 1:00 pm - 3:00 pm at Legacy Emanuel Hospital in Portland, OR. The local event is being coordinated by CHERUBS Oregon Co-Rep grandmother Shelly Moore & mother Alicia Gilbert to CDH angel Jayden Gilbert who died in March of 2010 after a 23 day fight against CDH & complications, and member Andrea Martin whose 12 year old daughter Sarah is a CDH survivor. http://portlandparadeofcherubs.eventbrite.com/
CHERUBS United Kingdom Representatives Clair Maher and Melanie Parsons are working with member Cara Stevenson to coordinate a national Light Up the Night Event with candles and lanterns. https://www.facebook.com/cdhsupport#!/events/248708328546723/
A Virtual Parade of Cherubs will include 100's of CDH families submitting stories, photos and video over social media. More information can be found at https://www.facebook.com/CherubsVirtualParade
Thursday, June 26th - Capitol Hill
