Thursday, April 30, 2009

Resources for Families Dealing With Congenital Diaphragmatic Hernia

I've been told today in several ways that our resources are hard to find - since so many new and expectant families had no idea we offer so much! So I wanted to make a list of what we offer and a link to the services to make it easier:

Our Web Site - more information about CDH than anywhere on the net with 1000's of pages!

All About CDH - information, diagrams, videos and more.

CDH Forums for Families - over 100 posts each day, 100's of topics. Get advice, help, info and support 24/7 from parents who have been in your shoes. Membership is FREE and it is all confidential.

CDH Parent Reference Guide - simple, easy to understand information on CDH written for parents whose babies were newly diagnosed.

CDH Brochure - in 4 different languages

CDH Research - research library, survey results and coming very, very soon an interactive CDH research survey for parents and researchers

Newsletters full of stories, news and much more -

International CDH Conference - members from several organizations and CDH researchers coming together

Congenital Diaphragmatic Hernia Day - May 17, 2009

CDH Events - tons and tons of events and get-togethers and fundraisers around the world

State & International Representatives - find local support.

On-Call Parents - need to talk to someone? They are on-call for you.

Videos of Cherubs - dozens of videos of cherubs, events, and more.

CDH Photo Albums - 100's of photos of children and adults born with CDH

CHERUBS Adopt A Hospital Program - help us to help families around the world by adopting a hospital to provide materials to for new CDH families

Our Blog -

Free On-Line Albums for CDH Families -

Free Blogs for CDH Families - keep your family and friends updated with these free blogs on our CDH informational site so they can also research!

CDH Blog Ring - group of CDH blogs written by parents

CDH Awareness Ticker - drop by and see how many babies have been born with CDH since 2000 as a new baby is diagnosed every 6 minutes somewhere in the world.

Research Library - add your links or view the links of others to CDH research articles and sites.

Personalized CDH Awareness Ribbon - Order a personalized ribbon with your cherub's name, date(s) and photo - send them to

"Stories of Cherubs" Vol. I & II - full of stories of 100's of families who have dealt with CDH

CDH Calender - featuring 100's of faces of children born with CDH

Congenital Diaphragmatic Hernia Awareness Items - including Clothes, Bibs, Maternity Shirts, Totes, Journals, Posters, Hats, and much, much, much more -

CDH Awareness Ribbon Car Magnets - Also available in a larger size

CDH Awareness Ribbon Buttons - just 18 cents each!!!!

CDH Awareness Bracelets - pink, blue and yellow silicone bracelets that say "CDH Awareness"

CDH Awareness Postage Stamps -

CDH Awareness Mailing Labels - download and print for free!

Random Acts of Kindness CDH Awareness Cards - there is no nicer way to raise awareness!

CHERUBS Facebook Group - talk to other CDH parents on Facebook

CHERUBS Myspace Page - talk to other CDH parents on Myspace

More Downloadable Info - info on where donations go, our non-profit paperwork, older newsletters, event brochures and more!

This is just a small list of what we offer and doesn't even include most of our awareness activities and projects. Drop on by our site and take a look at how CHERUBS has been helping families deal with Congenital Diaphragmatic Hernia for 14 years.

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