Tuesday, December 4, 2012

CHERUBS sponsors $10,000 Facebook Contest to Benefit CDH Research

Something very exciting is going on at CHERUBS and we want YOU to be a part of it! Thanks to all of you wonderful members and fans for buying and selling raffle tickets we are ready to award a $10,000 CONGENITAL DIAPHRAGMATIC HERNIA RESEARCH GRANT!!!! 

We could choose a hospital ourselves but we thought it would be more fun, and raise more awareness, to get your help! So the hospital with the most votes by December 30th will win $10,000 for CDH Research!!!!!!!!!!!!

Vote at https://www.facebook.com/questions/10151158907097006

In the running are the following CDH labs and clinics:

  • Congenital Diaphragmatic Hernia (CDH) Genetic Research Study
  • DHREAMS Research Study (Congenital Diaphragmatic Hernia) Lab 
  • St. Louis Fetal Care Institute 
  • Baylor College of Medicine CDH Genetic Lab 
  • The Center for Fetal Diagnosis and Treatment at CHOP 
  • UCSF Fetal Treatment Center 
  • Shands at the University of Florida CDH Clinic 
  • Boston Children's Hospital CDH Clinic 

 These facilities were chosen based on research history and long-term research so that the most families can be helped.

The prize money was raised by members and friends of CHERUBS through a 50/50 raffle fundraiser over the summer and early fall.   9003 tickets were told to raise $9003.00.  The addition $997.00 comes from CHERUBS CDH Research Fund.

Vote at https://www.facebook.com/questions/10151158907097006

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.   CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive.  The cause is not known.  Over a half million babies have been born with CDH since 2000. 

CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.  1600 babies are born with CDH every year in the United States.  Globally, a baby is born with CDH every 10 minutes.

CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.

CHERUBS  - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

CHERUBS LogoCHERUBS is a Guidestar Partner In Trust CharityCHERUBS is the world's first, oldest, and largest CDH non-profit organization.  We are truly a grassroots organization - CDH families creating something out of nothing when there was no other CDH group, information and services in 1995.  CHERUBS was created to make sure that no family endures Congenital Diaphragmatic Hernia without support or accurate information.  Our Board of Directors includes CDH parents, grandparents, survivors, nurses, doctors and the world's top CDH researchers. CHERUBS is run solely by volunteers and donations.  At CHERUBS, every CDH family has an opportunity to honor or remember our children while doing good to help others and work together as a CDH community. No other charity in the world has such a respected, educated or experienced group of leaders who care so much about the CDH community.

CHERUBS was not created by one family or for one family.   It was not created in honor or in memory of one child.   It is, and has always been, a group effort to help all families affected by Congenital Diaphragmatic Hernia.   It is built upon the experiences of CDH families, collaborations with CDH researchers and a strong desire to raise CDH awareness through projects and events created in honor and in memory of cherubs.   CHERUBS was named for all the babies lost to Congenital Diaphragmatic Hernia.

We are proud to serve over 4100 families in 54 countries and all 50 states affected by CDH since our creation.   Through our dozens of free ground-breaking services and the friendships made within our member community, CHERUBS has positively affected the lives of 1000's of CDH families and inspired many new CDH charities and project who have followed in our footsteps. We will continue to lead until Congenital Diaphragmatic Hernia is no more. We are devoted to finding the cause, prevention and best treatments for CDH.

Learn more about us through the links to the left.

Top Rated Charity of 2012 by Great Non-Profits

Top Rated Charity of 2012 by Great Non-Profits

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