Showing posts with label what all should know. Show all posts
Showing posts with label what all should know. Show all posts

Friday, June 5, 2009

Small Update on Congenital Diaphragmatic Hernia Awareness Trademark



Because CHERUBS is fighting against this trademark on behalf of ALL CDH families and those who care about these babies, we are updating you on a development:

Breath of Hope has retained an attorney to fight to own the trademark "Congenital Diaphragmatic Hernia Awareness"

FYI, CHERUBS attorneys are *pro bono" - not a dime is used of our donations to fight this horrible trademark that inhibits CDH Awareness.

BoH has been asked to remove this trademark and allow all CDH families and researchers to raise awareness freely. No response, except to file another trademark and now hire an attorney.

CDH Awareness belongs to the families and researchers, not a corporation that uses the trademark to attack other charities and CDH parents and that forces people to get "permission" and pay fees to say a common phrase we all use every day.

Agree that this is wrong? Please sign the petition. Please tell Breath of Hope, Inc and Elizabeth Doyle-Propst to stop using this phrase as a business slogan to profit off of and give it back to the CDH families where it belongs.

http://www.ipetitions.com/petition/cdhawareness/index.html

Sunday, May 17, 2009

Today is the Congenital Diaphragmatic Hernia Day of Prayer and Education

We ask that EVERYONE says a prayer (or make a wish) and tell someone about CDH today! Please take just 5 minutes to help educate people and to pray / wish for the end of this horrible birth defect.

Tell just 1 person about CDH and what it is. Do this in person, through an e-mail, blog post, FB comment... anything. Just tell at least 1 person about congenital diaphragmatic hernia.

7:00 pm, whatever time zone you're in... light a candle... say a prayer (or make a wish)... for all CDH babies and families.

We don't just wish for it or want it - we believe the end of CDH and are working hard to make it happen!

Today is the Congenital Diaphragmatic Hernia Day of Prayer and Education.

http://www.cdhsupport.org/awareness/cdhday.php

1000's of people around the world are joining in today, working together against CDH. CDH families, friends, doctors, nurses, and members of the general public are participating. Many CDH organizations are participating. This day is for ALL those affected by CDH.

It is not our hope that someday CDH will end - Hope is wishing for whatever you want the outcome to be. Faith is knowing and believing that someday CDH will end. We don't need hope - we have faith. Someday the cause and prevention of CDH will be known and no more babies and families will suffer from this horrible birth defect.