Saturday, December 29, 2007

Our December, 2007 E-Newsletter

Dear Members,

We hope that this holiday season finds you well. We have a *ton* of activities going on at CHERUBS! Please make sure to log in to our new site to keep up with all that we have going on to help families of children born with CDH! CHERUBS now has over 2100 members in all 50 states and 38 countries, including over 150 medical care providers. We have had over 200 members in the past 5 months since our new site went live! Our web site averages over 300,000 visits per month. CHERUBS is growing and helping more CDH families than ever!

Our latest activities:

* CHERUBS Name Change - as of January 1, 2008, our new official name will be CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. Our new name will reflect the change in society as we go from Advocacy to Awareness, which means the same thing basically! :)

* New CDH Research Web Site - CHERUBS has started on a new CDH research web site for our medical professional members, as well as for compiling and tabulating our Congenital Diaphragmatic Hernia Research Surveys.Our medical professional members will have their own forum there to discuss CDH, and our parent members will be able to contribute to research! We have 150 medical professional in CHERUBS. But there will be public forums for them to post current research studies and publications that you all can read too. It will be a place for all the medical links to research articles, where CDH specialists can msg each other or post to the forum (like we do here), plus all of our CDH Research Surveys can be filled out there and we can tally up the research results from them and our membership form. So all CDH parents can join in on the research surveys and hopefully, together, we can find a common denominator to the cause and prevention of CDH. Also, doctors will be able to post themselves asking parents to join in on research studies. It will become *the* CDH Research Site on the Internet! Estimated completion date is January 28, 2008 so parents and doctors will have all the information they need on CDH at their fingertips!

* Our New Web Site Is A Hit! - members can talk to each other, create blogs, set up their own personal photo albums, read stories of other CDH families and much, much more! Please visit us at If you have any trouble logging onto the site please contact our New Member Coordinator, Amy, at or me at

* CHERUBS 2008 International Member Conference - July 25th, 2008 in Raleigh, North Carolina. All members are welcome to attend! We are currently looking for sponsors and guest speakers and will book the hotel soon. We will provide childcare during the conference but encourage you to bring a grandparent or sitter to watch your children if you are worried about germs from being in groups. We will also provide lunch and the hotel will provide breakfast. We will get room discounts for those of you who will be staying at the same hotel as the conference will be held and there will be an airport shuttle. You can keep up with more details on our web site.

* Angel Ball - July 26, 2008 in Durham, North Carolina at Duke Gardens. Get out your ball gowns and wedding dresses, this white ball fundraiser will be at a beautiful setting next to Duke Hospitals. We will also be holding a silent auction during the ball, with donations from artists that will all feature an angel theme. It will be held the day after our conference, in the next town so parents are encouraged to attend!

* Golf Tournament - July 27, 2008 in Wake Forest, North Carolina. Another great event in this great weekend! With 2 PGA Tour Pros invited and one of the world's top 5 longest drivers already booked to attend, this golf tournament is sure to be fun and educational! We also have a new car that has been donated to giveaway to the first person to get a hole in one!

* Silver Lining Newsletter - our Fall, 2007 issue is available to download from our site at Our Winter, 2007 issue will be out in January!

* New Board Members - we would like to welcome Amy Rademaker (Secretary), Shane Perry (Legal Advisor), and Betty Mekdeci (Professional Advisor).

* Congenital Diaphragmatic Hernia Awareness Ribbon - our members have voted on-line for a new ribbon to reflect CDH Awareness and we are proud to announce a new, orginal Congenital Diaphragmatic Hernia Awareness Ribbon. You can view the ribbon (which is baby blue, yellow and pink with clouds) on our site. You can also purchase items with this ribbon on our web site at or the car ribbon magnets at

* New CDH Awareness Logo - For a more "macho" logo for the dads to wear or for those of you that like to put the location stickers on the backs of your cars, we now have a new CDH logo! You can see it below or on our web site at

* More CDH Awareness & CHERUBS Fundraisers - CDH Awareness Postage Stamps, Cafepress Items, Ribbon Car Magnets, Valentine's Fundraisers, ATV Ride, Holiday Card Contest, New Awareness Logo and Ribbon, Adopt A Cherub Program, Personalized Awareness Graphics, Coin Jar Fundraiser, Member Yearbook, Music CD, Stories of Cherubs Book, Angel Ball, Golf Tournament, and much much more! Learn how you can get involved in raising funds and/or awareness!

* Help CHERUBS to provide information to CDH Families by being a CDH Info Packet Angel! - You can print our Congenital Diaphragmatic Hernia Parent Reference Guide directly from our web site and take copies to your doctors so that the next CDH family that comes along will have information and sources of support. It's just a few cents to print and it would help so much! You can also print inside them "Donated in honor / memory of __________". Or you can have a Packet Party! Packets include our Parent Reference Guide, brochure, old newsletters, new newsletter, Parent Membership Form, and other hand outs. This is a great project for your family reunion, remember a cherub on their birthday or memorial day for a cherub who has passed away, a fun project at a birthday party for a surviving cherub!

* Donate to CHERUBS While Shopping and Searching On-Line - As you start your holiday shopping please remember that every search and every product you purchase through shopping through means a donation to CHERUBS! It does not cost you anything to do this, the stores make the donations. Target, Sear and many top department stores participate. All you have to do is go through to start shopping! You can go to their site and put in CHERUBS as your charity of choice. Or you can click here;

* Free CDH Awareness Address Labels - Download and print these return address labels for free, for yourself, family and friends! Every letter that you mail will raise CDH Awareness!

* Downloadable Information - you can download copies of past newsletters, our Parent Reference Guide, our Brochure and much more at

* CHERUBS Timeline - We sure have come a long way, CDH babies! You can view all of our past and present activities at

* CHERUBS On-Line - You can find us on myspace at, on facebook at and MSN Live Spaces at, read the Wikipedia hubbab at, on and at, on MDJunction at, and Blogger at

* Adopt A Cherub Program - Adopt a cherub character graphic to post in your e-mail signature, web site, blog, myspace or facebook account or to print - all to raise CDH Awareness!

* CHERUBS Posting Contest - Every month on our web site, one lucky and talkative member wins a t-shirt!


CHERUBS 2008 Event and Fundraising Schedule

January, 2008 - CHERUBS Name Change! CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
January, 2008 - CDH Research Drive
January, 2008 - Silver Lining Newsletter Issue Published

February, 2008 - Valentine's Day CDH Awareness Poster Sales
February, 2008 - CDH Awareness Media Drive
February, 2008 - CDH Awareness Ribbon Car Magnets Sale

March, 2008 - Congenital Diaphragmatic Hernia Research Survey Results
March, 2008 - CDH Parent Reference Guide Information Drive and Packet Parties!

April 19, 2008 - CHERUBS ATV Ride (Attica, IN)
April, 2008 - Silver Lining Newsletter Issue Published

May, 2008 - Celebrity Auction
May, 2008 - Ebay Member Yard Sales

June 14, 2008 - Michigan Member Picnic (Lansing, MI)
June, 2008 - Texas Member Picnic (location to be announced)
June, 2008 - North Carolina Member Picnic (Raleigh, NC)

July, 2008 - Ohio Member Picnic (Columbus, OH)
July 25, 2008 - CHERUBS International Member Conference (Raleigh, NC)
July 26, 2008 - CHERUBS Angel Ball (Duke Gardens, Duke University, Durham, NC)
July 26, 2008 - CHERUBS Silent Angel Auction (Durham, NC)
July 27, 2008 - CHERUBS Golf Tournament (Wake Forest, NC)

August, 2008 - Silver Lining Newsletter Issue Published

September, 2008 - CDH Parent Reference Guide Information Drive and Packet Parties!

October, 2008 - Australia Member Conference
October, 2008 - Trick-or-Treating for CHERUBS CDH Awareness Drive

November - Silver Lining Newsletter Issue Published

December, 2008 - Holiday Coin Jar Fundraisers
December, 2008 - CHERUBS Tree Fundraiser (Wake Forest, NC)
December, 2008 - Holiday Raffles

Stay tuned to our site for more info!

Conference & Get-Together Information -

Fundraisers & Awareness Events Information -


Some Important CHERUBS Links:

CHERUBS New Web Site -

Register / Sign Up with CHERUBS -

CHERUBS Member Portal -

Donate to CHERUBS -

Public & Member Forums -

CHERUBS Silver Lining Newsletter -

CDH Research Library -

CHERUBS Photo Albums -

CHERUBS Member Albums -

CHERUBS Member Blogs -

CHERUBS Volunteers -

Downloadable Information About Congenital Diaphragmatic Hernia -

CHERUBS Timeline -

I know that this holiday season is so hard on so many of you who just lost your cherubs or who are still struggling with medical issues with surviving cherubs... please know that you are in my prayers and that all of us are here for you, just a click away.

Thank you, each of you, for your continued support of CHERUBS and families affected by Congenital Diaphragmatic Hernia. Please remember CHERUBS in your end of year donations by making a tax-deductible donation to help us to reach and support more families. You can donate by mail at CHERUBS, 270 Coley Rd, Henderson, NC 27537 or on-line at

May you all have a wonderful New Year!

Dawn M. Torrence

President & Founder, CHERUBS
Also mom to Shane (1/28/93 - 9/11/99) LCDH x6, multiple complications and birth defects

No comments: