Saturday, November 28, 2009

Submit Your Videos to Go to Congress & help other families affected by Congenital Diaphragmatic Hernia!

We are working on a new video to release with the Congressional Bill to stop the trademark on CDH Awareness. This bill and a CDH Research Bill will be ready next week for CDH families to help submit to Congress!

As most of you know the trademark on "Congenital Diaphragmatic Hernia Awareness" has wrecked havoc in the CDH community with charities being threatened with lawsuits other cyber bullying. It is the ONLY trademark of it's kind in the USPTO and is currently being Petitioned to Cancel by CHERUBS with the support of many other CDH organizations and over 6000 CDH families and pediatric surgeons.

The Free Awareness Bill video will have the history of why the trademark was created along with court audio, court documents and other public information to show that this trademark was created to harm others and prevent awareness. But it will feature these videos and these beautiful faces standing up against the trademark to keep awareness free for those affected by Congenital Diaphragmatic Hernia and all other causes.

Other causes and charities will also be submitting their own videos as well. We will be working with the entire non-profit community to help keep awareness free for everyone and to stop this precedent setting trademark that limits awareness on a devastating birth defect that desperately needs awareness.

The Cherubs Bill video will include photos and videos of cherubs and their stories battling CDH. As we all know there is virtually no funding for CDH research. CDH has affected over half a million babies since 2000 - this means CDH has killed over a quarter million babies since 2000. More research on Congenital Diaphragmatic Hernia to find the cause, prevention and best treatments is desperately needed.

When the paperwork gets submitted to our Congressmen and Senators, the videos will be included. If you would like your cherub on this video please upload your video to YouTube! Grieving families can also participate!

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