Thursday, January 28, 2010

The Alliance of Congential Diaphragmatic Hernia Organizations

Congratulations to Jana Lewallen, new Chairperson of ACDHO!

The site is still under construction, there are a lot of new CDH groups to add and guidelines to tweek but we are so excited to have a new Chairperson and new site!  ACDHO is a wonderful group and a huge asset to the CDH community.  Through it's members, it gives parents a wealth of accurate information and compassionate support, builds research and awareness collaborations and offers CDH families and researchers a source of safe and positive referrals.

The member list is under construction - lots of new groups will be voted on and added.   Those listed are either members, have been invited or will be voted on ASAP.    To suggest a group, please visit the web site.

Members of ACDHO can bear the following distinguishing seal:

The Alliance of Congenital Diaphragmatic Hernia Organizations  Seal of Integrity

Yes, it's just a graphic but it can be beacon of hope and trust to CDH parents searching for support and accurate information.   After all the CDH community has been through the past few years with trademarks and drama, all CDH families need a safe place to turn to made up of people and groups that they can trust in, participate in, support - without adding worry to the stress that they are already dealing with with Congenital Diaphragmatic Hernia.

ACDHO is a group of people who want to work together in a professional and productive manner.   Who put the entire CDH community first.  It's members include CDH Researchers - including all the world's best CDH researchers by membership through their research hospitals or through Medical Advisory boards of ACDHO's charity members.  It also includes CDH charities and groups who wish to work together to help families affected by Congenital Diaphragmatic Hernia.

This is a new decade and new CDH community - a grown up CDH community without behavior that's detrimental to the cause we should all be supporting.  The members of ACDHO have turned their heads away from the negativity and look forward to a bright future of shared common goals in a positive environment.

CHERUBS looks forward to working with the researchers, charities and groups in ACDHO and being a part of something full of hope and promise for the whole CDH community.

"Leadership is not magnetic personality — that can just as well be a glib tongue. It is not "making friends and influencing people" — that is flattery. Leadership is lifting a person's vision to higher sights, the raising of a person's performance to a higher standard, the building of a personality beyond its normal limitations" - Peter Drucker

Mission Statement:  The Alliance of Congenital Diaphragmatic Hernia Organizations is a group of CDH charities, sites and researchers working together to bring support, research and maintain integrity in the CDH Community.

The organizations and people in ACDHO strive to help babies and families affected by Congenital Diaphragmatic Hernia by offering research, support, funds or other services with positive, productive and professional working relationships within the CDH community.

ACDHO members are chosen for their integrity and the respect that they show to CDH families and other organizations and most of all, for their desire to work as one community keeping the best interests of CDH babies at the forefront of all services.

ACDHO has a new leader and a new site, along with the "ACDHO Seal of Integrity" so that CDH parents will know which groups have their best interests at heart and which hospitals have an expertise in CDH care.

Stay tuned for more information!

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