Over .5 Million Babies born with Congenital Diaphragmatic Hernia Since 2000

If you like the CDH stat counter to the left, you can pick up the blogger / blogspot code at http://www.cdhsupport.org/graphics/cdhstatcounter-blogger.txt

HTML code can be downloaded at http://www.cdhsupport.org/graphics/cdhstatcounter-html.txt

We're still working on coding for Facebook, Myspace, Live pages and Wordpress. If you want to help on that code, please let us know!


In the United States:

There are approximately 6 million pregnancies every year throughout the United States:

* 4,058,000 live births
* 1,995,840 pregnancy losses

1 in 2500 babies is diagnosed with CDH. That means over 1600 babies are born with Congenital Diaphragmatic Hernia EVERY YEAR in the United States Alone.

With a 50% survival rate, 800 of those babies will die.

Today, and every day, at least 4 families will be devastated with the news of CDH.



Worldwide:

The World Census Bureau estimates that in 2008 over 350,000 babies are born in the world every day = 147 babies will be born with CDH every day.

According to the IDB (International Database) from the U.S. Census site, 257 people are born every minute globally. That means that somewhere in the world, every 10 minutes a baby is born with Congenital Diaphragmatic Hernia. Every 10 minutes.

1 CDH baby every 10 minutes.

These numbers add up to over a half million CDH babies since January 1, 2000!

No one knows the cause of CDH.

No one knows how to prevent CDH.

Hardly anyone knows what CDH is unless someone you love has been affected by it.

CHERUBS and the CDH Study Group are the only 2 organizations actively researching Congenital Diaphragmatic Hernia on a global platform. CHERUBS is the only organization offering global support to families of children born with CDH, with members in 38 countries.


What can you do to help?

Raise awareness. http://www.cdhsupport.org/awareness, http://www.cafepress.com/cherubs, http://www.zazzle.com/cherubs

Donate to research. http://www.cdhresearch.org

Participate in events. http://www.cdhsupport.org/members/viewforum.php?f=184

Help support CDH families. http://www.cdhsupport.org



References:

http://www.americanpregnancy.org/main/statistics.html
http://www.worldpopulationbalance.org/pop/metronome.php
http://www.census.gov/ipc/www/idb/

Congenital Diaphragmatic Hernia Media and Internet Awareness

Below are just a few of the Congenital
Diaphragmatic Hernia Awareness Activities at CHERUBS. We
are adding more all the time! Please join in with
family and friends to bring more attention to CDH!

If you have any events that you would like us to add, please let us know.

Media & Internet Awareness

	CDH Informational Video
	Media Blitz - Let's Get This Writing Campaign Going! :) Letter for Contacting Newspapers and Magazines
	National CDH Newspaper Campaign
	"Adopt A Cherub" Program
	CHERUBS Member Blogs
	Personalized Graphics for CDH Awareness
	CHERUBS On YouTube
	CHERUBS on Guidestar.org
	CHERUBS on JustGiving.org
	CHERUBS on Goodsearch.com
	CHERUBS on MDJunction.com
	CHERUBS MSN Live Space
	CHERUBS Myspace Page
	CHERUBS Facebook Page
	CHERUBS Facebook CDH Group
	CHERUBS Facebook CDH Cause
	CHERUBS Facebook Goodsearch Group
	CHERUBS Blogger Account
	CHERUBS Fight Against Congenital Diaphragmatic Hernia Campaign
	CHERUBS on Change.org
	CHERUBS on Wikipedia
	CHERUBS on Zazzle
	CHERUBS on Cafepress
	CHERUBS on Firstgiving

From April 7, 1999

We've been talking about the occurrance rate of CDH as compared to spina bifida and cystic fibrosis for years. Especially how low CDH awareness is!!! We've done a ton of research over the years and I was putting some stuff together this weekend for a project and I ran across a bunch of interesting old posts on our lists. I thought I'd post a few of them. Heck, I'll post several over the next few days. If any of you have any neat stats, please feel free to post too!



From April 7, 1999:

-----------------------------------

Re: Boys vs. Girls Theory

LOL, Heidi, now you've got me searching the internet, trying to find the
statistics on boys vs
girls born. I did not know any of the information you posted- learn something
new every day.
: )

This is what I found at www.infoplease.com (love this site, just found it- after
searching an
hour):
In 1996 in the US, 1,990,480 boys and 1,901,014 girls were born (ok, I was wrong
about the boy
to girl ratio- no idea where I came up with that, remember hearing it
somewhere). This info
that I found only includes babies born to White and African American parents (no
idea why it
didn't include other races). Total births for 1996 in the US was 3,891,494. If
we assume
(meaning no one knows for sure) that 1 in every 2500 babies has CDH, this means
that
approximately 1556 babies were born with CDH in 1996 in just these 2 races
alone- 4-5 babies a
day. WOW!!!!

Some CDH occurance trivia facts to think about in comparison to more publicized
devastations
(I'm not discounting any of these tragedies, Lord knows my family falls into
more than one of
these lists, this is just FYI):

-Approx. 1556 babies are born with CDH each year, approx. 775 of these babies do
not survive
(.04% chance of being born with CDH).
-Tornados injure approx. 1500 people each year in the US, 80 don't survive.
-In 1997, 306 people were struck by lightening, 42 didn't survive. (this means
we're 5 times
more likely to have a baby with CDH than to be struck by lightening).
-1n 1996, 37 people in the US were killed by hurricanes.
-118 people were killed by floods in the US in 1997.
-In 1989, 98 people in the US died of Botulism
-In 1996, 508 cases of Measles were reported in the US, 1 person didn't survive.
There were
238 cases of German Measles.
-There were 560 quadruplet births in the US in 1996.


I had a horrible time trying to find world birth statistics. Couldn't find a
thing on the birth
rate or gender rate.

My head is spinning thinking of all the CDH born in the world every day- and
with only 300
families in CHERUBS, so many 1000's of families are going through this alone.

Well, too much brain overload for me tonight. I promise to get all the other
e-mails answered
today (behind, yet again).

Dawn T.