Showing posts with label newspaper. Show all posts
Showing posts with label newspaper. Show all posts

Monday, September 20, 2010

CHERUBS in the Durham Herald-Sun

http://www.heraldsun.com/view/full_story/9590190/article-CHERUBS-nonprofit-receives--30K



CHERUBS nonprofit receives $30K
Submitted story

Recently in Durham, CHERUBS, an international children's charity headquartered in Wake Forest, received $30,000 as part of the APX Gives Back Project. This cash presentation is part of the nationwide APX Alarm Gives Back Project where more than 375 nonprofit organizations competed over the past few months through voting on Facebook. CHERUBS won first place regionally and second place nationally.

CHERUBS serves families of babies affected by Congenital Diaphragmatic Hernia (CDH). CDH is a birth defect that occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. More than 600,000 babies have been born with CDH worldwide since 2000. Fifty percent of babies born with CDH do not survive. The cause is not known.

Both Duke and UNC are highly-rated care centers for babies born with Congenital Diaphragmatic Hernia and we value our ties to both of these institutions and to our community here in the Triangle. CHERUBS was dreamed up in the Pediatric Intensive Care Unit at Duke when the founders met while their sons were patients in 1993. It was founded two years later in 1995 with the support and encouragement of a pediatric surgeon at UNC Chapel Hill. CHERUBS is the world's first and largest organization for CDH, helping families in 38 countries. Our charity offers dozens of free services for families, promotes CDH awareness through our national Save the Cherubs campaign, and we are currently working with three congressional sponsors for $50 million in National Institutes of Health funding for CDH research. This prize from APX doubled its annual budget.


Read more: The Herald-Sun - CHERUBS nonprofit receives 30K

Wednesday, June 16, 2010

Save the Cherubs & cherub Aaron Younce make the newspaper with the world's first CDH awareness billboard!

We made the paper!  Here is an article posted in the Wilkesboro, NC "The Record"


Local youth on first billboard for CDH campaign

By REBECCA TRIPLETT-JOHNSON
For The Record

Aaron Younce, of North Wilkesboro, is featured on the first ever billboard for the Congenital Diaphragmatic Hernia Association's [CDHA] national awareness campaign, 'Save the Cherubs'. 
And, Wilkes County is the premier site for the billboard presentation.   The electronic sign which rotates images every few seconds, is located on the east bound side of West D Street near Arby's and will remain through June 23.  Billboard space was donated by Lamar Advertising.   Williamson and her husband Craig, members of the Younce family and Severt were on hand as the billboard was first displayed last week.
Younce is depicted on the sign wearing cherub wings, the symbol of 'Save the Cherubs' campaign, which was founded by Dawn Williamson in 1995.   Photos for the campaign were taken by The Record's Missy Severt and are being used on billboards, pamphlets and the CDHA website.
Younce, the son of Carl and Julie Younce, attends Mountain View Elementary School and has lived with the severe disorder since his birth in 1999.  
 "I am so happy to be on the billboard so that lots of people can see it and learn about what CDH is," said Younce.  "I hope it will also help people understand what 'Save the Cherubs' is all about and what it is doing to help others who have it while working to find out why the disorder happens to babies."   
CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs to move into the chest cavity preventing complete and normal lung development and growth.  One in every 2500 babies are born with CDH.
Upon Younce's birth, doctors gave his parents the horrific prognosis that he would not live.  He spent the first three months of his life in the PICU and NICU at Wake Forest Baptist Medical Center where he underwent two major surgeries and numerous other medical procedures to help correct some of the most critical issues.  When his team of specialists determined he had gained enough strength to go home, his family turned their nursery into an in home hospital room equipped with life saving oxygen, heart monitors, suction machines, feeding pumps and pulse oximeter.  For many years, this was the normal everyday life in the home. 
 With continued medical support, family love and God's blessings, Younce gained strength and abilities that enabled him to detach from his highly controlled and monitored lifestyle.  Today he is capable of living without daily oxygen except when he requires extra breathing help during bouts of illness.  However, CDH has left Younce with pulmonary hyperplasia of the left lung, pulmonary hypotension and asthma, making every other illness that he contracts, such as colds or viruses, much more serious and harder to fight.
 CDH, unknown to most, occurs as often as other defects such as Cystic Fibrosis and Spina Bifida.  The goal of the Raleigh based, national CDH CHERUBS non-profit organization is to bring awareness, understanding and hope for families fighting the deadly defect.
 "As a parent of a child with CDH it is so hard to watch your child struggle to just breathe at times," said Aaron's mother Julie. "To sit in the NICU and not know what the next five minutes will hold for your baby is the worst feeling in the world.  Aaron is a little older now and continues to struggle with simple things we so often take for granite like eating and gaining weight. Even with all of his continued problems never one time has he questioned why or why me. He is  going out there and telling anyone and everyone about CDH and cherubs in order to make them aware of the serious disorder in hopes of one day finding a cause and a cure.  Aaron is a hero to me."
 Younce is looking forward to spending lots of time swimming and learning about the art of clay sculpture during his summer break.  He is excited to enter the fourth grade in the fall and see all of his old friends while making new ones at school.
For more information on CDHA and 'Save the Cherubs' visit www.savethecherubs.org
 

Wednesday, May 5, 2010

CDH Survivor & Save the Cherubs CDH Awareness Campaign in the news!

 

Local youth chosen Ambassador for CDH awareness campaign
By REBECCA TRIPLETT-JOHNSON
For The Record

Aaron Younce, son of Carl and Julie Younce of North Wilkesboro, has been chosen as one of several Ambassadors to represent children born with Congenital Diaphragmatic Hernia [CDH] for the 'Save the Cherubs' national awareness campaign.
Younce, a student at Mountain View Elementary School, has lived with the severe disorder since his birth in 1999.  His parents learned of the defect prior to his birth.  
 CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs to move into the chest cavity preventing complete and normal lung development and growth.  One in every 2500 babies are born with CDH.
 Upon his birth, doctors gave his parents the horrific prognosis that he would not live. Younce spent the first three months of his life in the PICU and NICU at Wake Forest Baptist Medical Center where he underwent two major surgeries and numerous other medical procedures to help correct some of the most critical issues.  When his team of specialists determined he had gained enough strength to go home, his family turned their nursery into an in home hospital room equipped with life saving oxygen, heart monitors, suction machines, feeding pumps and pulse oximeter.  For many years, this was the normal everyday life in the home. 
With continued medical support, family love and God's blessings, Younce gained strength and abilities that enabled him to detach from his highly controlled and monitored lifestyle.  Today he is capable of living without daily oxygen except when he requires extra breathing help during bouts of illness.  However, CDH has left Younce with pulmonary hyperplasia of the left lung, pulmonary hypotension and asthma, making every other illness that he contracts, such as colds or viruses,  much more serious and harder to fight.
CDH, unknown to most, occurs as often as other defects such as Cystic Fibrosis and Spina Bifida.  The goal of the Raleigh based, national CDH CHERUBS non-profit organization is to bring awareness, understanding and hope to families fighting the deadly defect. 
     "When Aaron learned that he had been chosen to represent the CHERUBS, he was excited and relieved to know it would help people understand what he is living with," said his mother.  "After numerous questions from his friends at school as to what caused his many scars, he kidded with them and told them that he had been bitten by a shark.  He has always been very relaxed about discussing his illness and wants everyone else to understand it. By being one of the faces of this 'Save the Cherubs' campaign, he is glad that he will be able to help others who suffer from CDH and those who don't but want to understand it.
 Missy Severt, The Record Sports photographer and owner of Photo Memories Studios was chosen to photograph Younce for the campaign.  Her work will be showcased in the national awareness campaign in print and billboards.  The first digital billboard will be displayed in early May along Hwy 421 Bypass near Arby's.
 "Our family is proud to be part of such a wonderful project and appreciate all of the time that Missy put into the many photographs she took," said Younce. "We hope this will bring much awareness and education to a very serious and life threatening birth defect that, until now, has been unknown to almost everyone."
 For more information on CDH and "Save the Cherubs' go to www.savethecherubs.org



Tuesday, September 2, 2008

CDH & Cherubs in the Media!

LOTS of CDH Awareness going on this summer!

Oklahoma City, OK newspaper "The Oklahoman" with Dawn, LaneyKate Daniels & family and the CDH Study Group (September, 2008) - http://newsok.com/parents-of-children-with-congenital-diaphragmatic-hernia-cdh-warn-world/article/3290587

Raleigh / Durham / Chapel Hill, NC News 14 television interview with Dawn (July, 2008)- http://news14.com/content/local_news/triangle/597536/group-brings-attention-to-disease/Default.aspx

Children's Hospital, Alabama with Caden Parker (July, 2008) - Radio Telephone for Children's Hospital

Durham, NC "Herald-Sun" newspaper article on CHERUBS Angel Ball (July, 2008) - http://heraldsun.southernheadlines.com/features/columns/ray/104-976419.cfm

Middleton, OH "Middleton Journal" newspaper articles on Henry English (June, 2008) - http://www.middletownjournal.com/news/content/oh/story/news/local/2008/06/01/mj060108mccrabbhenry_a1.html
and http://www.middletownjournal.com/n/content/oh/story/news/local/2008/06/01/mj060108mccrabbhenry_inside.html

Arkansas, Jack Ryan Gillham Foundation in the local paper and TV (July, 2008) - http://www.4029tv.com/video/16851917/index.html and http://www.nwarktimes.com/adg/News/230536/

Carolina News Wire press release (July, 2008) - http://carolinanewswire.com/news/News.cgi?database=001news.db&command=viewone&id=262&op=t

Plus several more articles and interviews that will be out soon!