Tuesday, January 11, 2011

$25,000 Congenital Diaphragmatic Hernia Family Assistance Fund

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Dear Members,

CHERUBS is in our last month in Pepsi Refresh before we take a much needed voting break.   We have 1 last chance to win some money to help families and we are pushing just 1 project - $25,000 for the CDH Family Assistance Fund.


You can vote 5 ways:

1. at Pepsi's site - http://www.refresheverything.com/cdhfamilies

2. by text - text 101202 to 73774 (pepsi)

3. by Facebook Application - http://www.facebook.com/apps/application.php?id=263136462520

4. by iphone - http://ax.itunes.apple.com/us/app/pepsi-refresh-everything/id398265175?mt=8#ls=1

5. by android - http://www.androidzoom.com/android_applications/lifestyle/pepsi-refresh-project_nfii.html


http://www.voteforcdh.org will take you directly to the Pepsi page also.

Don't forget to vote for our friends at Vote for Kids Health - 9 other great charities who need your votes and who are voting for us - http://www.voteforkidshealth.org


What will this grant do?

The CDH Family Assistance Fund helps families with the expenses incurred traveling for medical care for very high-risk pregnancies and critically ill newborns. Often families have to travel 100's of miles to hospitals that are equipped to handle babies born with Congenital Diaphragmatic Hernia (CDH) and that provide ECMO, a heart and lung bypass machine, if needed. Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. 50% of babies born with CDH do not survive. The cause of CDH is not known, but it is as common as Cystic Fibrosis and Spina Bifida. Every 10 minutes a baby is born with CDH - adding up to over half a million babies since 2000. The hospital stay for a severely affected baby can be as long as 1 year. With the medical bills and emotional stress that these families go through, we want to offer a little help with making travel easier and affordable.


How will the 25K be Used?

100% of the $25,000 will be used to help CDH families in need.  100%.

$ 10,000 500 $20 gas cards
$ 5,000 10 $500 airline grants
$ 5,000 250 $20 grocery store gift cards
$ 2,500 125 $20 restaurant gift cards
$ 2,500 50 $50 hotel gift cards

Budget Notes: Most pediatric hospitals are affiliated with the Ronald McDonald House, which provides lodging for many of our families. Our request for hotel gift cards are for those traveling long distances overnight to reach a hospital or those rare times when a Ronald McDonald House does not have an empty room.

How else can you help?

- Vote.
- Post on Facebook, Twitter, Myspace, Blogs, etc
- Forward this e-mail and ask others to vote in honor / memory of your cherub


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Thank you for your continued support in helping CDH families!

--
Dawn M. Torrence Williamson
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

501(c)III non-profit organization serving over 3500 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.

http://www.cdhsupport.org
http://www.cdhresearch.org
http://cdhsupport.blogspot.com
http://www.cdhconference.org

Phone - 919-610-0129
Fax - 815-425-9155
Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

Friday, December 31, 2010

CHERUBS 2010 Year In Review

What a year at CHERUBS!  Full of highs of accomplishing so much for the CDH community, yet full of lows of losing so many babies.   2010 has been a very eventful year (more links to details coming soon!):

January:
  • Our 2009 Financials show that our operating costs for last year were just 19%!  81% of our funds went to directly helping CDH families!
  • New Social Media CDH Awareness campaign begun
  • First Save the Cherubs Photo Shoot
  • Congenital Diaphragmatic Hernia Baby Books go to print
  • Site redesign begun

February:

March:

April:


May:

June:

July:
  • Work on new CDH Research Database begun
  • The World's First CDH Awareness Billboard
  • Oz Kidd-Ward CDH Scholarship Fund created
  • More Save the Cherubs photo shoots
  • Larrison family CDH Hope Totebag item drive in memory of Hanna Rae Rose Larrison
  • Navy sailors at Norfolk put together 100 handprint kits for CDH Hope Totebags in memory of Hanna Rae Rose Larrison
  • CHERUBS members take "Vote for Cherubs" photos

August:

September:

October:

November:
  • CHERUBS raises CDH Awareness to over half a million people Raleigh Christmas Parade
  • 2nd Annual Christmas With Kasey Fundraiser
  • CHERUBS Holiday Shopping Ebay Fundraiser
  • CHERUBS in Televised Parade Video on 2 TV Stations
  • Angel Ball Committee Chuck E. Cheese Family Get-Together
  • Enamel CDH Awareness Ribbons created
  • Over 200 personalized CDH Awareness Ribbons created

December:

We know we haven't listed everything - please e-mail us your events, photos, etc to membership@cdhsupport.org

It's been a great year for CHERUBS!   Thank you to all of our donors, sponsors, volunteers, members and supporters for helping us to make this the best, most productive year yet!

If you'd like to make a tax-deductible end-of-year donation to CHERUBS, it would be much appreciated and put to very good use.  On-line donations can be given at http://www.cdhdonations.org   Our IRS and financial information can be found at http://www.cherubs-cdh.org/financial.php

Everyone at CHERUBS wishes you a happy, healthy and blessed New Year!!!

    Tuesday, December 28, 2010

    Green Family Represents CDH Awareness in March of Dimes Walk in Marylandd

    On April 25, 2010 the Green family walked in memory of their cherub, Kylee Freedom Green, in the March of Dimes Walk for Babies walk!   They were able to in the Memory Mile, raising more Congenital Diaphragmatic Hernia Awareness!









    CDH HOPE Baby Shower in honor of Aaron Younce

     Aaron and NC Representative Shirley Randleman, who took time out of her busy schedule to attend and learn about CDH!


    On October 16, 2010 a fundraising baby shower was held for our CDH HOPE Totebag Project in honor of Congenital Diaphragmatic Hernia survivor, Aaron Younce!!!   Thank you so much to Julie Younce and Diane Caudill for putting this together and raising tons of items for the babies!!!































    Breaths for Brielle Cha Cha for CHOP Fundraiser Zumbathon



    On December 4th the Santos family held a wonderful fundraiser for Congenital Diaphragmatic Hernia research t CHOP in memory of Brielle.  Thank you to everyone who put this together and participated in memory of such a special little cherub!