Tuesday, May 11, 2010

CHERUBS 2009 International Member Conference - May 13-16, 2010 in Orlando!

Summer Bay Resort Holiday Inn Express Orlando Florida

Our conferences are designed for families of CDH survivors, grieving CDH families, adult survivors and CDH researchers!  

Since our first conference in 2000, CHERUBS is proud to work with the world's best CDH hospitals and researchers to bring the families and the medical world together.   Our 2009 conference bought together 8 CDH groups and families from 4 countries!  

Members who have attended our conferences will tell you that they learned so much more about CDH, made new friends and gained a lot of support.

Conference Schedule:

Thursday, May 13, 2010

7:00 - 9:00 pm - Pizza Party and Introductions

Friday, May 14, 2010 - CDH Research

8:00 am - 12:00 am - Guest Researchers On Current CDH Research Studies

  • Drs. Meaghan Russell and Mauro Longani from Mass General / Boston Children’s Hospital
  • Drs. Marc Arkovitz and Julia Wynn from New York Presbyterian Columbia / DHREAMS
  • Bella Belleza-Bascon, RN, MHA from Texas Children's Hospital / Fetal Center, Baylor College of Medicine

Saturday, May 15, 2010 - CDH Support

8:00 am - 8:45 am Round Table Discussions Session 1

  • For CDH Survivors (choose one)
    • Physical and Occupational Therapies
    • Feeding Issues
  • For Grieving CDH Families (choose one)
    • Faith & Doubts In Grief
    • Dealing With Anger

9:00 am - 9:45 am Round Table Discussions Session 2

  • For CDH Survivors (choose one)
    • IEPs for School Age Children
    • Early Intervention for Infants & Toddlers

  • For Grieving CDH Families (choose one)
    • Grief and Siblings
    • Dealing With Special Days

10:00 am - 10:45 am Round Table Discussions Session 3

  • For CDH Survivors (choose one)
    • Dealing with Family & Friends
    • Marriage & Having a Special Needs Child
  • For Grieving CDH Families (choose one)
    • Dealing with Family & Friends
    • Marriage & Grief

11:00 am - 11:45 am Round Table Discussions Session 4
  • For CDH Survivors (choose one)
    • Pregnancy After CDH
    • Helping Other CDH Families
  • For Grieving CDH Families (choose one)
    • Pregnancy After CDH
    • Creating Something Good From Sadness

Sunday, May 16, 2010 - CDH Awareness

8:00 am - 8:30 am - "Current and future global efforts to raise CDH Awareness" by Dawn Williamson, President & Founder

8:30 am - 9:30 am - Group discussion on how we can raise more CDH Awareness as a community

9:30 am - 10:30 am - Group discussion on how families can raise CDH Awareness in honor and in memory of individual cherubs.

10:30 am - 11:00 am - Saying Good-byes

We hope to see you there!

Our 2009 International Member Conference for families affected by CDH was a wonderful success!

Our conference concluded on Saturday, much to everyone's sadness. There were a few tears saying good-bye. We hope to all see each other again next year in San Francisco at our 2010 CDH Conference - along with lots of new families.

It truly was a wonderful week. Hopefully everyone left with more information on CDH, new friends and knowing that we are a big CDH family working together to help them and all those affected by Congenital Diaphragmatic Hernia.

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