Tuesday, July 5, 2011

Daily CDH Vote Reminder - Meet Cherub Nevaeh Johnson

Please Vote Today - This is your daily vote reminder to help babies born with Congenital Diaphragmatic Hernia!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes!    How to vote:

1. Go to http://www.facebook.com/VivintHome and "Like" Vivint
2. Go to http://www.voteforcdh.org and click the Vote button
3. Log in through Facebook and Vote!
4. Repeat #2 and #3 daily through August 27, 2011

Contest Update - The 1st place charity has big celebrity endorsement as a movie star has a son with that condition.  CDH doesn't have a huge movie star as a spokesperson but we can sure work hard to find one!   If you know a celebrity who may be willing to help our babies simply by posting / tweeting, please ask them.  :)

Contest Voter Tip Of The Day - Like the frame around Nevaeh's photo below?  Get your own at http://imikimi.com/main/view_kimi/1tVnn-106

More Contest Info - visit http://www.voteforcherubs.org for information on how you can win prizes in our voter raffle, the contest video, free graphics, learn where the money would go to help CDH babies and more.

Did You Know? - Congenital Diaphragmatic Hernia can affect anyone.  It doesn't care what your race, gender, religion or socioeconomic status is.  It can happen to any baby in any family.  The cause is unknown.

Meet Our Cherubs!  - Nevaeh was diagnosed at 17 weeks gestation ~ at first she was misdiagnosed as a CCAM and after much testing and many weeks they finally decided it was CDH. Then began the many weeks of ultrasounds, doctors trying to convince my daughter to abort due to the survival rate was not good and they continued to try to convince her to abort right up until 8 months when she finally made them understand that abortion was NOT an option! Nevaeh was born via C-Section and for the first week of her life she was put on ECMO which is a heart/lung bypass machine for babies. She was unable to eat, was heavily medicated to the point where she was paralyzed so that she wouldnt try to put the tubes and wires out that were keeping her alive, her parents weren't able to hold her , nor were they able to get newborn hospital pictures of her due to she was too sick to have them taken, her parents were also told not to speak to her due to when she heard their voices her blood pressure would raise . After a week she had her corrective surgery to close the whole in her diaphraghm and put her organs back into her stomache cavity where they belonged, though her heart was pushed to the other side of her body and one of her lungs was much smaller than the other ~ this newborn that the doctors tried so hard to convinced her mother to abort is now a very fiesty 1 and half year old that is running around pretty much healthy ~ and I say pretty much due to she does have breathing problems and does need a nebulizer but after all she has been through you would never know it to look at her that she only had a 50% chance of survival. We are one of the lucky families~ we know this and count our blessings everyday ~ there are so many other families that are not so lucky ~ every 10 minutes a baby is born with CDH and only half will survive !

Thank you all for your support and your votes to help CDH babies!

Vote for CHERUBS at http://www.voteforcdh.org

Contest Info, Fliers, Graphics, etc at http://www.voteforcherubs.org

Subscribe to Daily Vote Reminders - dailyvote-subscribe@voteforcherubs.org
Unubscribe to Daily Vote Reminders - dailyvote-unsubscribe@voteforcherubs.org

Feel free to forward this to family and friends!

Submit your cherub to be featured by e-mailing his/her name, photo, date(s) and a short paragraph to membership@cdhsupport.org.  By submitting, you give CHERUBS permission to use this data on our site, blogs, newsletters, videos, etc to raise CDH Awareness.

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Public 501(c)III non-profit organization serving over 3000 CDH families in 38 countries.  Searching for the cause, prevention and best treatments of CDH since 1995.



Phone - 919-610-0129          E-mail - info@cdhsupport.org

Mailing Address - 3650 Rogers Rd #290, Wake Forest, NC 27587, USA

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