Member Quotes - Julie Younce

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"Cherubs has been our rock since our sons CDH diagnosis.  I couldn't imagine going through one day of our CDH journey without them" - Julie Younce, mom of Aaron

http://www.cherubs-cdh.org/

Member Quotes - Neil Rubenstein

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS is an amazing organization that does a tremendous amount with very little. My son was one of the lucky ones to come home after only 1 month. I soon realized that my CHERUBS family were the only ones the truly understood what we went through during our NICU stay. It is very easy for family to forget after the "worst" has passed" - Neil Rubenstein, father of Aidan

http://www.cherubs-cdh.org/

Member Quotes - Tracy Meats

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS is an amazing support group, a place to come to for support, encouragement, help, and understanding during a difficult time. Having a child with CDH changed my life and my son's life forever and without CHERUBS, the darkest hours would have been unbearable" - Tracy Meats, mom of Ian
http://www.cherubs-cdh.org/

Member Quotes - Tara Hall

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS was there with us from the very beginning, helping us get through so many tough times. For 16 yrs we have dealt with this birth defect and have had CHERUBS to help us every step of the way". - Tara Hall, mom to Brandon, age 16

http://www.cherubs-cdh.org/

Member Quotes - Chris Weaver

CHERUBS Helps Families of Babies Born with Congenital Diaphragmatic Hernia

"CHERUBS is more than a charity, they are "family" who know exactly what you are going through because they walked the same type of journey with CDH . Cherubs gave me HOPE . ♥" - Chris Weaver, grandmother to Navaeh"

http://www.cherubs-cdh.org/

CHERUBS Kids Carnival this Sunday in Chicago!

CHERUBS Kids Carnival this Sunday.

Date: October 14
Time: 11 am - 2 pm
Location: Recreation Center of Highland Park located at 1207 Park Ave. W, Highland Park, Illinois
Admission: FREE - there is no entrance fee but tickets will be sold to play the games, etc.
Additional Venue information: Plenty of parking is available onsite. This is an indoor event that will take place in one of the basketball courts with food and redemption in a separate room.

What kinds of activities will you have at the carnival? We will have 20+ carnival games, balloon twisting by Aunt Nora, face painting, KidSnips will be doing hair, TAT4u will be offering airbrush tattoos, a bounce house, trivia games by Loren of Fun, Fun, Fun DJ's, and music & dancing games with Mindy from the Rock & Roll Arts Academy.

Are discount tickets available? Until Friday, tickets are being sold on the CHERUBS Illinois blog at a discount when you use coupon code = CHERUBS. Just click the drop down menu on the right hand side of this blog to purchase your discounted tickets. For a very limited time, you can purchase 15 tickets for $10 (with coupon code). Normal price the day-of the carnival will be $10 for 12 tickets.

Any other way to get more Free tickets? Yes, check into the CHERUBS Kids Carnival on foursquare and get 2 more FREE tickets (when you spend at least $10 on tickets). Just show your check-in at the ticket booth to claim your 2 FREE tickets. Only 2 FREE tickets per family.

Is there an unlimited game pass available? Absolutely. For $25, you can purchase an unlimited 2 hour game pass. The pass is valid for 2 hours from time of purchase (or until 1:30 p.m whichever is earlier). The pass is valid for all carnival games and the bounce house. Pass is not valid for face painting, tattoos, food, raffle, etc.

How much does everything "cost"?

• All carnival games will cost 1 ticket
• Bounce house will cost 2 tickets
• Small face paint (arm, cheek, etc.) will cost 1 ticket and a full face paint will cost 3 tickets
• Airbrush tattoo will cost 1 ticket and so will a balloon animal
• KidSnips makeovers will cost
• 1 ticket for temporary hair color and/or faux mohawk
• 2 tickets for an awesome braid
• 4 tickets for a braided hair wrap with colored string
• Trivia games are FREE (and we have some great pizes to give away)
• Highland Pop popcorn will cost 2 tickets
• Cotton candy will cost 2 tickets
• Vienna hot dog lunch (including soda/water, chips and a pickle) will cost 4 tickets
• Sugar Beez cookies will be 1 ticket and Spunky Dunkers donuts will cost 2 tickets
• Carnival tickets will also be used to participate in the silent raffle for amazing prizes

What kinds of prizes are available in the silent raffle? Too many to list right now...but great stuff from the Chicago Sky, Bulls, Boomers, Wolves, Lynfred Winery, Wildfire, Creative Celebrations, Rock & Roll Academy, Embraced, Fab Band, Sprinkle with Love, The Hungry Monkey, Panera Bread, Noodles & Co., Sports Clips, The Best Salon, Make-a-Messterpiece, and lots more!!

Anything else? We will also be selling 50/50 Raffle for Research tickets for $20 per ticket. 50% of the sales go towards CDH research and the other 50% of ticket sales go to the winner. The goal is to sell 1,000 tickets so $10,000 can be donated towards research and the winner will receive the remaining $10,000.

What forms of payment will be accepted at the carnival? You can pay for carnival tickets with cash, check (made out to CHERUBS), or credit card. Please note that 50/50 Raffle for Research tickets can only be purchased with cash or check. 

Will donations be accepted? Of course! You can make additional donation checks out to CHERUBS or just tell us to "keep the change" to make an additional donation. You can also make a donation to CHERUBS or to the Carnival Fund right here on the CHERUBS Illinois blog using your credit card.

Contact CHERUBS Illinois State Representative, Neil, for more information at illinois@cherubs-cdh.org

CALL TO ACTION: Ask Your Senators to Support Senate Bill S.3396 for CDH Research

Sen. Sessions joined with Sen. Ben Cardin (D-MD) to introduce legislation this summer to raise public awareness of Congenital Diaphragmatic Hernia (CDH) and place a greater emphasis on medical research to diagnose and treat the disease. Sessions’... grandson, Jim Beau, is a CDH survivor:

"I am honored to introduce this bill today, and am grateful for Senator Cardin’s support. This is a critical issue and early detection and awareness make a dramatic impact in the survival rate. However, more research is needed and this legislation asks the National Institutes of Health to determine whether a greater emphasis can be placed on CDH research within its existing budget."

CHERUBS is so proud to be a part of this historic event, the first step to real help to save the lives of babies born with CDH. 

 

Click here to track the progress of the Bill.

 

 

 

 

 

 

 

 

 

 

 

 

CALL TO ACTION:

 

On July 18, 2012 Senator Jefferson Sessions (R-AL) formally introduced the Congenital Diaphragmatic Hernia Research Bill, co-sponsored by Senator Benjamin Cardin (D-MD).

Please ask your Congressmen to support Senate Bill S.3396

1. Download Letter (DOC or PDF format) to Send To Your Senator / Congressman. Instructions and mailing addresses included.
2. Include The CDH Research Bill and a photo of your cherub
3. Sign the CDH Research Bill petition and ask others to sign as well!

 

 

 

Change.org|Start an Online Petition »

 

 

 

2012 Masquerading Angels Ball Master of Ceremonies, Annette Newell

 

Meet our emcee for the 2012 Masquerading Angels Ball, NBC 17 Reporter, Annette Newell!

Annette Newell is an Edward R. Murrow Award winning journalist with more than 10 years of experience reporting in North Carolina.

Annette first began working with CHERUBS this year when she interviewed the charity for a piece on the International Day of Congenital Diaphragmatic Hernia Awareness.

CHERUBS 2012 Masquerading Angels Ball

CHERUBS 2012 Masquerading Angels Ball

October 20, 2012

6:00 pm - Midnight

Capital City Club
Raleigh, NC

Formal Charity Masquerade Ball

Come join us or a magical night for a good cause. Celebrity guests, enchanting decor, amazing music, a casino, silent auction and beautiful attire will make this a night to remember.

Money raised from this event will go to CHERUBS to fund services to further help families of babies born with Congenital Diaphragmatic Hernia. CHERUBS is a 501(c)III international children's charity.

Attire: Our FORMAL masquerade ball encourages men to wear tuxedos and women to wear floor-length gowns. FORMAL period costumes are welcome. Formal evening gowns are welcome. Formal masquerade masks are highly encouraged. Not acceptible; typical Halloween costumes, short dresses, street clothes and scary masks.

Age Requirement: You must be 21 years old or older to attend. CHERUBS reserves the right to refuse ticket sales when necessary.

Live music by Raleigh based band, The Stone Age Romeos!

Sponsored by:

Diamond Sponsor Halloween & More

2012 Sponsorships now available! - Sponsor or donate auction items in honor/memory of your cherub!

Our Organization:

CHERUBS is a 501(c)III organization located in North Carolina. CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH). As of April 2012, we have over 4000 members in all 50 states and 54countries. Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH. We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

www.cdhsupport.org

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. The cause is not yet known.

Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.

CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

What does CHERUBS do for CDH Families?

What does CHERUBS do for CDH Families?

cherub Liam Hunt

* CDH HOPE Totebags for new and expectant parents full of accurate and easy-to-understand information as well as comfort items
* Information packets for parents of older survivors and grieving families full of accurate and easy-to-understand CDH information
* Financial Assistance for families
* CDH Research Bill currently in the Senate
* $10,000 grants for CDH Research
* Annual International CDH Conference
* International & State Representatives and Hospital Angels to help families on a local level
* Local get-togethers and events for families
* Safe, secure and free forums for families to have support 24/7.
* Parades of Cherubs and other events on the International Day of CDH Awareness on April 19th
* State and City Proclamations for the International Day of CDH Awareness on April 19th
* Save the Cherubs CDH Awareness campaign
* Extensive web site with accurate information
* Medical Advisory Board hosted CDH Q&A chats with members
* CDH Research Database
* Videos on CDH
* Free awareness graphics
* Adopt a Hospital Kits for hospitals to have info on hand for newly diagnosed families
* Awareness bracelets and ribbons for new members
* Stories of Cherubs books of the stories of all these precious children
* Calendars of Cherubs of all the photos of all these precious children
* Free personalized CDH Awareness Ribbon graphics

These are all services that we provide right now in 2012.   This list does not include fundraisers or items that we sell to raise awareness or all the many social media activities that we have.  Or the list of services that we have coming soon.  The list would be much, much longer if we included all other achievements and projects from the past 17 years.

We are honored to be here and to be a light of hope and support for CDH families during their darkest hours.  <3 a="a" href="http://www.cherubs-cdh.org" nbsp="nbsp">http://www.cherubs-cdh.org