Friday, August 6, 2010

"Amanda Helps Becky Say Farewell" by Patricia Goskowski Kubus

WONDERFUL book to help children deal with grief. Patricia was kind enough to send us a copy and it's just a wonderful, wonderful tool to help kids. Written in memory of her cherub, Amanda!!! We are very excited to be working with Patricia on some upcoming projects for CDH families! Thank you, Patricia for all you're doing in memory of Amanda to help other cherubs!

http://www.patriciakubus.com/

Amanda Helps Becky Say Farewell

by Patricia Goskowski Kubus

"Patricia Goskowski Kubus's book Amanda Helps Becky Say Farewell is a compassionate, compelling story written to help children answer tough questions about death.

Amanda Helps Becky Say Farewell explains life and death in a beautiful and sensitive way, trusting that God has his hand on all that happens in life.

—Diana Junior, Librarian, Forest City Branch Library



Available to Purchase Directly from the Publishing Company by clicking clicking here.

Available to Purchase online at Amazon by clicking clicking here.

Available to Purchase online at Borders by clicking clicking here.

Available to Purchase online at Barns and Noble by clicking clicking here.


Click here for the Audio Book link.

Thursday, August 5, 2010

Robert's CDH Road Rally



CDH survivor, Robert Cook, held an event in South Carolina as a high school project and it was a huge success, raising $1640.00!!!!!

He handed out ribbon pins and brochures, raised awareness not only in his school but all over his town for his Senior Project. 

WTG Robert for the incredible job that you did!!!!!!

A special thanks to McKenzie Sports Products and Dave Sachs for their support!!!!


Addison's Lemonade Stand


In the photo above is Ashley Burch. She is a full-time college student at Bryant & Stratton who put together this lemonade stand as a project for Alpha Beta Gamma.

This project was created in honor of cherub Addison Owens, was born with Congenital Diaphragmatic Hernia. Ashley was able to get donated lemonade and fountains coolers to dispense the lemonade. She spent several hours selling lemonade and handing out flyers with Addison's story to raise awareness.

Ashley raised $58.32 for our CDH Awareness Fund! WTG, Ashley!!!!!

Monday, August 2, 2010

VoteForCDH.org



New web site! ALL the CDH contests to vote for CHERUBS in and info on participating in our contests so YOU can win prizes!!! :)
http://www.voteforcdh.org/





Sunday, August 1, 2010

Vote for CHERUBS in the Pepsi Refresh Contest!





CHERUBS is extremely proud to announce that we have 2 projects in the August Pepsi Refresh Contest!


Provide hospitals with information for families on CDH.
$25,000 grant to provide information to hospitals that will be available to families at the time of diagnosis.

3 ways to vote:
1. Pepsi Refresh Site - http://www.refresheverything.com/cdhhospitalkits2.  On Facebook - http://www.facebook.com/apps/application.php?id=263136462520
3.  Vote from your mobile phone - Text* 101211 to Pepsi (73774) 




Provide financial assistance to families affected by CDH.

$25,000 grant to help families with travel expenses when their cherubs are hospitalized.

3 ways to vote:
1. Pepsi Refresh Site - http://www.refresheverything.com/cdhfamilies
2.  On Facebook - http://www.facebook.com/apps/application.php?id=263136462520
3.  Vote from your mobile phone - Text* 101202 to Pepsi (73774)


You can vote for both every day! 

Please don't forget to continue to vote for us in the Eastern Division of the APX contest as well!  We are currently battling it out between 1st and 2nd place for $100,000!  http://www.facebook.com/apxalarm?ref=mf

Thank you for supporting families affected by CDH!







Wednesday, July 21, 2010

CHERUBS 2009 Financial Statement


Dear Members and Friends,

CHERUBS 2009 Financial Statement is available to view on-line at http://cdhsupport.org/CHERUBS2009FinancialStatement.pdf

Only 18% is used for NPO operating costs (paper, PO box, licenses, fax services, etc) - 82% goes directly to help CDH families!!!! Well of course 100% goes to help CDH families but 82% directly! :)

If you'd like to help CHERUBS further our work you can  donate directly at http://www.cdhdonations.org/









CHERUBS is an IRS recognized non-profit organization since 1995.

Thank you for supporting families affected by CDH!

Tuesday, July 20, 2010

Prayers & Quotes for July 20, 2010

Prayers & Quotes for July 20, 2010

If you have a prayer request for a cherub or a family member of a cherub, you can send it to prayers@cdhsupport.org.

Please keep the following in your thoughts and prayers:

Newborn cherub James B., born 1/6/10, may finally get to leave the NICU and go to rehab! He has had a rough journey, including ECMO, trach, feeding tubes and setbacks. Please keep this amazing boy in your thought and prayers.

Newborn cherub Osmund K., is set to arrive this week, 7/22. Please pray for comfort and strength for this family.

Newborn cherub Whitney M., is set to arrive anytime this week! Please pray for comfort and strength for the family.

Newborn cherub Elijah V., arrived 7/8. He has had his CDH repair and successfully came off of ECMO. Please pray for strength for Elijah to continue with the progress in the right direction.

Newborn cherub Noah A. was born 5/25. He is working on nursing and learning to eat, which has been difficult for this little guy! Please pray for continued progress for Noah.

Newborn cherub Micah P. is still in the NICU. He now is on a trach and continues to get stronger. Pray for continued strength for Micah and his family. His family has decided to relocate to be near Micah and the NICU.

Newborn cherub Jonathan M., born 6/11 is in the NICU and fighting severe pulmonary hypertension, please pray for strength for Jonathan and his family. He has had his CDH repair.

Newborn cherub Josiah B. arrived 7/1. He has had his CDH repair, but is struggling to rid his body of the extra fluid accumulating in his chest. Please pray for continued healing for Josiah.

Newborn cherub Niklas E., arrived 7/7. He has made wonderful progress since his CDH repair surgery and is working on feeds. There are talks he may get to come very soon, pray for strength for baby Niklas.

Teenager Cherub Logan W. is set to have surgery on 8/19 for a pectus repair. His older brother Shane, is set to leave for basics 3 days before his surgery. Please keep Logan, Shane and the entire family in your thoughts and prayers during this emotional and difficult time.

Cherub Lewis B. is having a fundo and gtube surgery on 7/21.

Cherub Justin S. is need of prayers. He has been sprinting off the vent, but now doctors are needing to address his paradoxical breathing to continue progress in the right direction.

Adult cherub survivor Laura M., became a grandma again on 7/7! Welcome to the world Jimmie!

Carol S., mom to angel cherub Brielle S., is having difficulties recovering from her EXIT to ECMO procedure, please pray for her continued healing.

Newborn cherub Aidan R. is home after spending a month in the NICU and beating CDH! Please pray as he makes his transition to being home.

To all our families and friends that are fighting against the flu, colds, sickness…may you feel better soon and have no complications.


Cherubs on Their Way:

Cherub Alice H., due 7/27
Cherub Shelbi R ., due 7/30
Cherub Adalyn T., due 7/31
Cherub Finley D., due 8/13
Cherub Heath F., due 9/3
Cherub Savannah Q., due 9/4
Cherub Airynn E., due 9/12
Cherub Aurie B., due 9/17
Cherub baby boy M., due 9/25
Cherub Addison R., due 9/25
Cherub Isaac I., due 10/14
Cherub Abel B., due 10/28
Cherub Zoe C., due 12/1

All families expecting a baby with CDH, may you have continued hope and strength for the journey that lies ahead.


Newly Grieving Families:

To all families affected by CDH and the loss of your precious child, may you find peace and comfort and know you are never alone, for so many people care about you.


Today’s Quotes:

"Count your blessings, not your crosses; count your gains not your losses. Count your joys not your woes; Count your friends not your foes. Count your smiles not your tears; Count your courage not your fears. Count your full years not your lean; Count your kind deeds not your mean. Count your health not your wealth; And love your neighbor as much as yourself." -Author Unknown

"Love one another and help others to rise to the higher levels, simply by pouring out love. Love is infectious and the greatest healing energy." -Sai Baba

"Problems are not stop signs, they are guidelines." -Robert Schuller

"Extraordinary people survive under the most terrible circumstances and they become more extraordinary because of it" -Robertson Davies

Monday, July 19, 2010

Cherubs helping CHERUBS in the APX Contest!!!


The latest voting tallies are up and as of Friday we were in 1st place by 151 votes - up over 800 votes in 1 week!!!!!!!!   WTG CHERUBS family for pulling together and working hard for our babies and CDH Research and Support!!!!

It's been a long road in this contest.  We have overcome a lot of obstacles and we're still on top!   This is proof of what a few determined people can do with the help of friends and family for a great cause!!!! 

We have posted flyers, e-mailed 1000's, messaged 1000's of people on Facebook, posted on sites and we have begged, begged, begged people to vote while also raising a ton of Congenital Diaphragmatic Hernia Awreness!

We're also throwing a "contest within a contest" on Facebook - giving people a chance to win great prizes while helping our cause and raising awareness!!!!  But to be honest, I think the families just want to help out rather than win any prizes... they are all that compassionate and determined!  But they're still going to win prizes.  ;)

CHERUBS APX Contest Within A Contest!

(posted last week on Facebook by Dawn)

We hope everyone is voting! Want to raise more awareness and get votes in honor / memory of your cherub? Start an event page for the APX contest! Name it "Vote every day in honor/memory of _____ by voting for CHERUBS in the APX contest!" so every time your family and friends log in, they will be reminded to vote!

This is a contest inside a contest! CDH Awareness Kits and T-Shirts that say "I am a CDH Hero! I helped to 1000's of babies born with Congenital Diaphragmatic Hernia by raising money for CDH Research and Support!" will be awarded to the people who (1 prize each):

1. Whoever has the most "attendees" on their Vote for CHERUBS in the APX contest FB event.
2. Whoever has the most active wall on their event by getting people to vote and then post that they voted.
3. Whoever is the most creative off of Facebook to raise votes! Handing out flyers, have a "vote in" at work or school, talk to your church, etc. (take photos!)

Awards given by voting done on CHERUBS forums on August 22nd - 30th. All members can log in and vote on who should win the above 3 awards.

If CHERUBS wins the $100,000 prize, all 3 winners will ALSO win (valued at over $350!);

- 2 tickets to the Angel Ball
- "Stories of Cherubs Vol. I"
- "Stories of Cherubs Vol. II"
- CDH Baby Book
- "Cooking with Cherubs" Vol. II
- 4 personalized t-shirts each with their cherub's CDH Awareness ribbons on them
+ the above prizes of a CDH Awareness Kit and contest T-shirt!

What a great and fun way to raise awareness and funds for a good cause!!!!!

Here is an example event - http://www.facebook.com/event.php?eid=100836783305050

It is in memory of my son, Shane. I will recruit voters but won't be in this contest within a contest since I'm the President of CHERUBS and that wouldn't be fair. But all other members and volunteers can participate! :)

You are welcome to use any text or graphics off of this event page, CHERUBS site, our FB pages, etc that can help you in the contest!




Our Contest Entries as of July 18, 2010:



























































 




















 (not in contest)



CHERUBS needs your help.  We are in a contest on Facebook to win $100,000 for Congenital Diaphragmatic Hernia Research and Support.  

We are asking ALL groups, charities, families and friends to endorse us and help us to help babies affected by CDH.  So far the following groups and charities are actively supporting ALL families and groups,  including CHERUBS in this contest;  CHERUBS UK, CDH Rainbows, Real Hope for CDH, the Olivia Raine Foundation.   If your group or charity isn't participating in helping to raise $100,000 for CDH Research and Support, ask them to join in to help the babies!

Here is how to vote:

1. Go to http://www.facebook.com/apxalarm?v=app_121215224555298&ref=mf
2. Then click LIKE.
3. Next click the "Start nom and voting"
4. Click on the blue logo for Eastern charities
5. Scroll down (load more if necessary) and find CHERUBS and endorse us!

You can vote once EVERY day! Repost in honor or in memory of your cherub!