Monday, January 19, 2009


ACDHO (The Alliance of Congenital Diaphragmatic Hernia Organizations) was created as a forum for CDH organizations / groups / non-profits / sites to work together to help families affected by Congenital Diaphragmatic Hernia, to promote awareness and to increase research. The entire CDH community working together for positive goals in a positive environment.

Several members and other organizations are receiving threats and intimidating e-mails from Elizabeth Doyle-Propst so for the record:

ACDHO is not about Elizabeth or Breath or Hope. The CDH community has many other services and goals and does not revolve around one person or group or the dramas of groups who cannot get along with other organizations.

ACDHO does not have a leader. We are all equal.

ACDHO members should not be intimidated or attacked simply for trying to work with the CDH community.

If a member of ACDHO wishes to participate in standing against the Congenital Diaphragmatic Hernia Awareness trademark, then contacting them to intimidate them or harass them when there is a trial going on is a federal offense.

Breath of Hope, Inc and Elizabeth Doyle-Propst have been e-mailing and posting (rather immaturely) that "CHERUBS started it" when we filed the Petition to Cancel the trademark that was filed by Breath of Hope, Inc. Repeat - FILED BY BREATH OF HOPE, INC.

We are standing up for CDH Awareness and CDH families. Continuing to harass, threaten and intimidate CDH parents is unethical, cruel and illegal.

Contacting potential witnesses to intimidate them is a federal offense.

At any time, Breath of Hope, Inc can stop the trademark and stop this nonsense. Any statements that they cannot stop this trademark are false.

We highly recommend that Breath of Hope, Inc also find a lawyer.

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