Saturday, January 17, 2009

The Alliance of Congenital Diaphragmatic Hernia Organizations

CHERUBS is proud to be a member of ACDHO (The Alliance of Congenital Diaphragmatic Hernia Organizations). ACDHO was formed to build a stronger CDH community, with emphasis on working together in a professional and supportive manner, encouraging CDH Awareness and fighting against the ownership of it, increasing CDH Research and mostly to collectively offer CDH Families the most support possible.

The following organizations also honor such a high code of ethics and we are so happy that they are in existence helping in this fight against CDH:

CHERUBS Australia
Rainbow of Hope
Jack Ryan Gillham Foundation
Olivia Raine Foundation
Kays Kids / Real Hope For CDH
Johns Hopkins Unnamed CDH Group
Little Lambs
En Stitching Hernia Diafragmatica (The Netherlands)
Ernia Diaframmatica Congenita gruppo di supporto (Italy)
Association Hernie Daphragmatique (France)
CDH Study Group
Boston Childrens CDH Clinic

CHERUBS has been working with many of these organizations for years and some are very new. We have also been working with all CDH clinics and fetal care centers since the first one opened it's doors in San Francisco in the early 1990's. Of course there are more CDH clinics and hospitals who are involved and supportive as well! And we all have 1 thing in common - the desire to help families dealing with Congenital Diaphragmatic Hernia without any competition amongst each other, any ulterior motives and the drive to see "Congenital Diaphragmatic Hernia Awareness" given back to the families and researchers.

This is what Congenital Diaphragmatic Hernia Support is all about and we are so proud to be a part of it!

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