Take A Stand Against CDH

Parents and Medical Professionals around the world taking a stand in the fight against Congenital Diaphragmatic Hernia

http://www.youtube.com/watch?v=JtOElZcUyVM

Please forward, post, add to your profile, site or blog.... feel free to use this video anywhere to raise awareness of CDH

Thank you!
Dawn

http://www.cdhsupport.org

Coming Soon - Congenital Diaphragmatic Hernia R

CDH Research Site coming soon!

http://www.cdhresearch.org

CHERUBS Congenital Diaphragmatic Hernia Research Survey is the combined efforts of over 2000 CDH families and medical professionals. It takes information on the medical, family and exposure histories of CDH patients and compares data to look for the cause, prevention and better treatement of Congenital Diaphragmatic Hernia. Participation is voluntary, anonymous and free to all CDH families and medical staff. Data can be tabulated live for research and reference purposes.

Customized CDH Awareness Ribbon Items at Cafepress!

We are taking our customized Official Congenital Diaphragmatic Hernia Awareness Ribbon graphics and putting them on cafepress so families can raise awareness in honor / memory of their cherubs! If you would like a free personalized CDH Awareness Ribbon, please send your child's photo, name and date(s) to membership@cherubs-cdh.org with "CDH Awareness Ribbon" in the subject line.

We have over 75 more ribbons to add with requests coming in daily but here are a few already up on our store at http://www.cafepress.com/cherubs/5842791

Click on the thumbnails below to view sharper images.

New Congenital Diaphragmatic Hernia Education Items!

New CDH anatomy / education items in our cafepress store! Below are just a few of the over 100 new items. These are great tools to help explain to family and friends about Congenital Diaphragmatic Hernia, as well as great awareness items!

http://www.cafepress.com/cherubs/4814131

CDH & Cherubs in the Media!

LOTS of CDH Awareness going on this summer!

Oklahoma City, OK newspaper "The Oklahoman" with Dawn, LaneyKate Daniels & family and the CDH Study Group (September, 2008) - http://newsok.com/parents-of-children-with-congenital-diaphragmatic-hernia-cdh-warn-world/article/3290587

Raleigh / Durham / Chapel Hill, NC News 14 television interview with Dawn (July, 2008)- http://news14.com/content/local_news/triangle/597536/group-brings-attention-to-disease/Default.aspx

Children's Hospital, Alabama with Caden Parker (July, 2008) - Radio Telephone for Children's Hospital

Durham, NC "Herald-Sun" newspaper article on CHERUBS Angel Ball (July, 2008) - http://heraldsun.southernheadlines.com/features/columns/ray/104-976419.cfm

Middleton, OH "Middleton Journal" newspaper articles on Henry English (June, 2008) - http://www.middletownjournal.com/news/content/oh/story/news/local/2008/06/01/mj060108mccrabbhenry_a1.html
and http://www.middletownjournal.com/n/content/oh/story/news/local/2008/06/01/mj060108mccrabbhenry_inside.html

Arkansas, Jack Ryan Gillham Foundation in the local paper and TV (July, 2008) - http://www.4029tv.com/video/16851917/index.html and http://www.nwarktimes.com/adg/News/230536/

Carolina News Wire press release (July, 2008) - http://carolinanewswire.com/news/News.cgi?database=001news.db&command=viewone&id=262&op=t

Plus several more articles and interviews that will be out soon!

Stories of Cherubs Vol. II

"Stories of Cherubs Vol. II" coming out in time for the holidays! To submit your child's story you must be a member of CHERUBS & give publishing permission on your membership form. Then just e-mail your story and photo to membership@cherubs-cdh.org with your cherub's name and date(s) in the subject line. Submission deadline is October 15th!

You can still purchase "Stories of Cherubs" on our cafepress store at: http://www.cafepress.com/cherubs.91971767



Over 500 pages and 300 stories and photos of children born with Congenital Diaphragmatic Hernia. Families tell tales of what life is like to have a child with CDH and to sometimes lose those children. Heartfelt and honest, these stories are a wonderful tribute to cherubs and their families. This book is must have for family members and friends who struggle to understand CDH as well as wonderful guidebook for new and expectant CDH parents.

CHERUBS 2008 International CDH Conference

Our 2008 conference for families affected by Congenital Diaphragmatic Hernia was a huge success! We had amazing guest speakers from Boston Children's and Toronto Children's. Our families learned so much - talked, cried, laughed and it was just an incredible experience. Videos will posted soon, including video and slideshows from the doctors! For more information, check out our web site at http://www.cherubsconference.org

CHERUBS Angel Ball

Below is just a preview of the videos that we're working on from the Angel Ball. To see more photos and video check out the Angel Ball site at http://www.cherubsangelball.org It was an AMAZING night!!!! We're already planning our 2009 Angel Ball so stay tuned!

CHERUBS Golf Tournament

Our good friend, Bob the Blade, from 96 Rocks posted this on his blog "If I never do anything else in this life, in the end I will have this...I was put in a position on this earth to be able to get the word out...to get the word out for people trying to do good things like these crazy cats in Henderson, the Cherubs. The leader of this group lost her baby boy to CDH and she supports and fights every day for the people that have had this happen to them. There's just not much better than that. Except shooting even par. OMG I am so funny." He is an amazing guy and we adore him. Thank you Bob for putting together the great videos of the golf tournament and for M.C.'ing!

New Anatomy of Congenital Diaphragmatic Hernia Graphics

he following graphics are created by CHERUBS but free for public use!






Make sure to check out the 100's of Congenital Diaphragmatic Hernia Awareness items on our cafepress store at http://www.cafepress.com/cherubs !