Thursday, March 1, 2012

Celebration of CDH Awareness Daily EVERYWHERE - April 19

Congenital Diaphragmatic Hernia (CDH) is a severe birth defect that occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH affects 1 in every 2500 babies. 50% of babies born with CDH do not survive. The cause is unknown.

Since 1995 when the first charity for CDH was formed, families around the world have worked together to raise Congenital Diaphragmatic Hernia awareness through ribbons, posters, events, fundraisers and other products and activities. Over 700,000 babies have been born with CDH since 2000, yet most have never heard of this birth defect that is as common as Cystic Fibrosis and Spina Bifida.

Several non-profit organizations, informal groups and 1000's of families in 38 countries recognized the baby blue, pink and yellow cloud ribbon as the official CDH Awareness Ribbon. It was chosen through voting, owned by no one and is not associated with any trademarks or copyrights.


April 19th was chosen as a day to celebrate awareness of CDH but also to remind the public of the important of raising Congenital Diaphragmatic Hernia Awareness daily. The specific date was chosen because it marks the anniversary of a landmark trademark removal of "Congenital Diaphragmatic Hernia Awareness". The entire community fought together to remove that trademark, the first trademark on awareness of any cause, a trademark that was used to harm and threaten many CDH families who sought to raise awareness of this birth defect.

Another trademark was also filed on the phrase "Congenital Diaphragmatic Hernia Awareness Day" and still stands on record, including a ribbon of another color. It has not yet been appealed.

On April 19th, we invite ALL families, charities, groups, hospitals and friends to join the world's largest CDH charity, CHERUBS, along with 1000's of others including Congressmen and celebrities to work together to raise awareness of Congenital Diaphragmatic Hernia and promote CDH Research through the $50,000,000 Congenital Diaphragmatic Hernia Research Bill. Though we celebrate awareness, it is research that will save the lives of these babies.

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