Sunday, February 24, 2013

Harlem Shake for CDH Awareness with the Napers and Westenhofer Families & Friends

The Napers and Westenhofer Families & Friends do the Harlem Shake for Congenital Diaphragmatic Hernia Awareness!


If we get 100,000 signatures on the CDH Awareness White House petition within 30 days (by March 9, 2013) then the White House and President Obama will consider lighting up for April 19th for awareness.

What is Congenital Diaphragmatic Hernia?

CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.   CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive.  The cause is not known.  Over a half million babies have been born with CDH since 2000.

CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research.  1600 babies are born with CDH every year in the United States.  Globally, a baby is born with CDH every 10 minutes.

CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.

Learn more about CDH at

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